How did you get involved with cystic fibrosis as a clinician? I went to medical school with the plan to become a neonatologist because I loved working with children, but I was scientifically and ...
Daniela received a late cystic fibrosis diagnosis and is a liver transplant recipient. She is currently 24 years old and a full-time student pursing her bachelor’s degree in social work. She is still ...
Chronic lung allograft dysfunction (CLAD) is the primary cause of long-term mortality in lung transplant recipients. Current understanding of pathogenesis is limited, contributing to the lack of ...
Dear Honorable Members of the North Carolina House of Representatives: On behalf of the more than 1,100 people living with cystic fibrosis in North Carolina, we write to express our concerns regarding ...
In order to tell you about my cystic fibrosis diagnosis, I have to begin with my liver transplant journey. I promise everything will come together in the end so bear with me. When I was a baby, my ...
As described in the Information We Collect section of the Privacy Statement, the data we collect depends on the context of your interactions with the Cystic Fibrosis ...
Ever since Elizabeth was very young, she was a sickly child. Her teachers and classmates were familiar with her chronic cough. They knew not to worry about her coughing fits; this was just Elizabeth’s ...
We have about 70 chapters and offices across the country that work diligently to raise funds and support our community in the search for a cure. They host events (including virtually and outdoors) and ...
Grampions are adults 50+ who want to join the fight and help those living with CF lead full, productive lives. Join this growing community to find connection, support, and volunteer opportunities.
Every May, the cystic fibrosis community comes together for CF Awareness Month. The theme of this year’s CF Awareness Month is, “Resilient.” The Cystic Fibrosis Foundation has shareable resources to ...
The South Texas Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get involved.
In 2022, the community’s determination helped us achieve new milestones and fueled our mission for a cure for all. Read our annual report to learn more about our achievements this year, and about our ...